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1:29
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The Global Foundation for Peroxisomal Disorders
3.3K views · 27 reactions | What IS a peroxisomal disorder? Some of our favorite scientists help us explain what exactly a peroxisomal disorder is. Give this video a share and help us
The Global Foundation for Peroxisomal Disorders. . What IS a peroxisomal disorder? Some of our favorite scientists help us explain what exactly a peroxisomal disorder is. Give this video a share and help us spread awareness on peroxisomal disorders leading up to our annual awareness day #PAUSEwiththeGFPD! #GFPD #peroxisomaldisorder #raredisease ...
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Video: Peroxisomal disorders: Pathology review - Video Explanation! | Osmosis | Osmosis
osmosis.org
Jul 30, 2024
1:31
Gideon has a peroxisomal disorder. It comes with a host of challenges but to put it simply, the care he requires is the same as an infant. He's totally dependent on me to meet his every need. Waking up for him is difficult, but that's because he is usually up in the middle of the night. Nevertheless the morning routine is the same. Diaper change, breakfast, and therapy. Gideon was never able to swallow solid foods so he's on a totally pureed diet. Most mornings I blend a smoothie for him. We fee
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Life with a Happy Heart
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Harmony Mullins, a little girl from Kentucky diagnosed with a rare peroxisomal disorder, defied odds by celebrating her first birthday in February. "To celebrate a day that you never expect to happen is very humbling," her mother, Toni, told FOX Television Stations. "It was just a magnificent experience." | FOX 5 NY
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