Meet Ben. Ben has Angelman Syndrome which is an extremely rare genetic condition that affects around one in 15,000 children. It affects the nervous system and can cause physical and learning disabilities. The first symptoms of Angelman syndrome usually appear in children between 1 and 4 years of age. These symptoms may include: Absence or near absence of speech Developmental delays Learning disabilities Ataxia (problems with movement and balance) Epilepsy Small head size #epilepsyawareness #epil